Elijah S. 
Birth Date: January 11, 2019

Diagnosis: Hypoplastic Left Heart Syndrome

Theme: Mickey Mouse Clubhouse

Due Date: August 1, 2022
​Below is a list of patterns that have been chosen for this quilt.
Please check this list for duplications before signing up.
Link to sign-up form is at the bottom of the list.
Accepting 12 signups

1. Sandy S - MO - My-Cross-Stitch-Patterns - Shy Minnie - NA - Wearing pink, looking back over shoulder
2. Fran G - WI - Paragon's Walt  Disney Characters - Donald Duck - Pg 3 - Facing forward, waving hat
3. Jeanne O - PA - Mickey & Friends - Howdy Ya'll - Pg 13-14 - Goofy rear view, bent over, looking between legs
4. Carol M - AZ - Two Magic Pixels - Toodles - NA - Floating disk, shaped like Mickey's head, multi colored
5. Angela T - CA - Paragon's Walt Disney Characters - Mickey - Pg 2 - Standing, facing forward, w/ hands behind back 
6. Pam R - WA - Paragon's Walt Disney Characters - Magician Mickey - Pg 8 - Wearing robe & magician's hat, w/ star dust arch
7. Karen B - PA - Etsy DiStefanoArt - Donald Duck - NA - Hands on hips, turned right
8. Carol M - AZ - Etsy KeishasKraftsCo - Pluto - NA - Sitting, facing right
9. Sandra P - MA - i.pining.com - Daisy Duck - NA -Bust in circle, wearing pink &waving, turned right
10. Kate S - OK - Disney Home Ultimate Collection - Pluto in the Dog House - Pg 48-49 - In front of dog house
11. Amy L. - VA - Mickey Unlimited - Colored Blocks - Pg 54-55 - Head shots of Mickey, Goofy, Donald, and Minnie
12. Patricia O - NV - Etsy enCrafts - Mickey on Scooter - NA - Mickey on red scooter, going left

Elijah's Story

When Elijah was born he was sent to the NICU for Hypoglycemia. He was small, a poor feeder and had an "innocent" heart murmur that we were not aware of until discharge at 6 days old. We followed up on the murmur at 12 days old and that resulted in an ambulance ride to Cook Children's. 

We were told Elijah had Hypoplastic Left Heart Syndrome and needed emergency surgery. He was stabilized and had his first open heart surgery a few days later. The day after surgery he began seizing and we learned he'd suffered severe brain damage during surgery. His 2nd open heart surgery was only 2 months later and afterwards he developed Pulmonary Hypertension. He had feeding difficulties so had surgery to place a g-tube and something called a fundoapplication. 

At 8 months old he developed infantile spasms as a result of his brain injury, the treatment for that weakened his immune system and he became septic from a UTI. He smiled for the first time during that hospital stay and he hasn't stopped since. He is blind, non mobile and very delayed, but most importantly HAPPY!

Elijah is now 3 and has had several other procedures and heart catheterizations. Normally there is a 3rd surgery he would have, but he is not a candidate. So we are just focusing on the present.