21-10-Joshua-G
Joshua G.
Iowa
Birth Date: July 14, 2010

Diagnosis: KIF1A & Epilepsy

Theme: Mario Video Game

Due Date: June 1, 2021

Joshua's Story

Josh was born at 39 weeks, healthy and happy. He very soon began to show symptoms that things were not so. At 3 weeks, we rushed to the hospital for the first time with stridor, discovered to be caused by GERD and subglottic stenosis. He was never able to hold his own head or sit, so at 9 months, we began physical therapy with a diagnosis of hypotonia. We continued to need physical therapy to meet all milestones. 

At age 4 we finally received diagnoses of intellectual disability and autism. Very soon after this seizure activity began and the diagnosis of partial complex epilepsy was made. We continued to treat everything while adding an ADHD diagnosis that exacerbated everything else. 

Finally at age 9 the physicians decided there was more going on than we were seeing. Genetic testing produced results of KIF1A, a rare neurodegenerative genetic disorder that can be fatal. This is mostly unknown as only 200 worldwide have it and will be a very unknown course.

​Below is a list of patterns that have been chosen for this quilt.
Please check this list for duplications before signing up.
Link to sign-up form is at the bottom of the list.
Accepting 20 signups
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1. Jeanne O - PA - Nintendo Bowling - Bowling Mario - NA
2. Jennifer P - NC - Birdie Stitching - Mario & Peach - NA - Princess Peach kissing Mario on the cheek
3. Laura N - PA - Etsy UpUpDownDownCrafts - Super Mario Collage - NA - 30 game symbols
4. Karen B - PA - Etsy IrisInLoveDesigns - Super Luigi - NA - Facing right
5. Tara A - TX - Etsy ChocoCocoStitch - Mario Flower Sampler - NA - 12 plant game symbols
6. Debbie S - AL - Etsy StitchoThePast - Mario Kart Start Line - NA - 3 karts at starting line
7. Sharon H - UK - Stitcher's own design - Yoshi - NA - Smiling, walking right
8. Mary Ann M - MO - Virtual Ponto Cruz - Yoshi - NA - Standing, facing left
9. Amy H - PA - Etsy PixelPerfectPatterns - Love Is - NA - Heart-shaped collage of game symbols
10. Jeneen F - PA - Etsy PixelHooker - Mario - NA - Jumping, facing right
11. Carol L - PA - Etsy StitchesMania - Super Mario - NA - "Super Mario" above brothers & game pieces
12. Joan M - AZ - Etsy BombshellStitches - Yoshi's Cookie - NA - Yoshi running right w/ Mario riding & holding tray of cookies
13. Angela T - CA - Etsy AnimCrossStitch - Mario Sampler - NA - 17 characters & game symbols
14. Kaye S - OK - Nintendo Power & Sporty Mario - Sporty Mario - Pg 2-3 - Kicking a soccer ball
15. Bill P - NC - p-tites-croix-et-jeux-d-aiguilles - Bowser - NA - Standing, facing left
16. Carol H - PA - Etsy IrisInLoveDesigns - Yoshi - NA - Standing on tiptoe, facing left
17. Bonnie W - WA - Etsy IrisInLoveDesigns - Super Mario - NA - Standing w/ right fist in air
18. Sandy G - VA - my-cross-stitch-patterns.com - Mario - NA - Wearing raccoon costume, running left
19. Sandra P - MA - Cross Stitch Quest - Toad Brigade - NA - 8 various colored Toadstools
20. Hallie W - CA - Etsy PixStitchCanada - Bowser Beware - NA - Standing w/ left arm out & right pulled back, facing right

SIGNUPS FOR THIS QUILT ARE CLOSED