Kamreigh C.
New York

Birth Date: November 17, 2018

Diagnosis:  Brain Cancer: Medulloblastoma WNT subtype

Theme - Butterflies

 Favorite Colors:  Blue

Due Date: November 15, 2024

Kamreigh's Journey

My daughter was experiencing headaches for a few months. I took her to the pediatrician and urgent care multiple times just to be told it's viral or "she's having a day". She woke up crying saying her neck hurt one day and still - it's viral. 

I took her to Carthage Area Hospital ER on March 25, 2024. We met with Dr. Turrin and he listened to us! Within a half hour he had labs drawn and a CT scan done and answers for us. He came in and told me he had answers but it's not anything he wants to tell us. Then says she has a mass in her brain. Told us we would be sent by ambulance to Golisanos (children's hospital) in Syracuse for care. 

Thursday, March 28 she had her first brain surgery. The doctors there told us they removed the whole tumor so we were ecstatic! We met with multiple oncologists there that didn't like that we asked questions. That caused a big red flag for me, so I reached out to St Jude. Thankfully, they accepted Kamreigh. 

We traveled to Tennessee on April 13. They did a follow up MRI which showed more than half of the tumor was still there. So she had another brain surgery on April 19. The doctor was able to do MRIs during her surgery and was able to get 98% of the tumor out! When he came in to tell us about the success he also told us Syracuse never put the bone back in her head; so now she has titanium mesh in place of the bone. 

She's completed the 6 weeks of radiation at St. Jude. We're home for a few weeks then back to St. Jude for chemo and will hopefully be home in November!
Below is a list of patterns that have been chosen for this quilt.
Please check this list for duplications before signing up.
Link to sign-up form is at the bottom of the list.
Accepting 12 signups
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​1. Sandy S - MO - free butterfly pattern https://www.alexstitches.com/index.php/animals/a-multicolored-butterfly-free-pcstitch-cross-stitch-pattern multi-colored butterfly

2. Debbie S - AL - 
  https://www.etsy.com/listing/1214671426/butterfly-cross-stitch-instant-download?ga_order=most_relevant&ga_search_type=all&ga_view_type=gallery&ga_search_query=cross+stitch+pattern+butterfly&ref=sr_gallery-2-8&pro=1&sts=1&dd=1&content_source=63c2a1dbcade900b5788ea0c51f29b73e170a65c%253A1214671426&search_preloaded_img=1&organic_search_click=1

3. Ginny H - NY- ButterflyHas hearts, music notes, squares, etc. (Not full coverage) Michaela Learner Freebie Chart

4. Nancy S - NJ - Butterfly charted designs Butterfly primarily with pink and red colors Will add border to meet requirements

5. Laura P - FL - Whimsical Cross Stitch--Blue ButterflyBlue Butterfly with Floral BorderFrom the book Whimsical Cross Stitch-Cari Buziak

6. Mary Ann M - MO - Butterfly Galaxy SpaceButterfly - galaxy space with blues and purples (Etsy-StitchesLoversShop)https://www.etsy.com/listing/793098117/butterfly-counted-cross-stitch-pattern?click_key=8c6a4f6a251a0725ac4fb41666b806da62defb5e%3A793098117&click_sum=2049c816&external=1&ref=hp_opfy-2-4&pro=1

7. Rhonda M - AK - Butterfly HeartNumerous small colorful butterflies that form a heart shape in totalhttps://www.etsy.com/listing/466220497/

8. Leigh G - TN - Butterfly Cross Stitch - Blue butterfly

9. Fran G - WI - Butterflies with Morning Glories 2 butterflies on morning glories 

10. Julie S - IL - Etsy 2x2 Stitch ArtButterfly Cross Stitch Pattern

11. Gail B - ID - Quick & Easy CrossStitch ButterfliesBlue & yellow butterflies on a leaf

12. Steph L - ID - Quick & Easy CrossStitch ButterfliesBlue butterfly