Evelyn K.
Minnesota
Birth Date - June 23, 2007

Diagnosis - Pulmonary Hypertension, Restrictive airway disease, TBX4 gene mutation 

Theme: Realistic Horses

Due Date: December 1, 2022

Evelyn's Story

Evelyn was born and within minutes of birth started to turn grey and not be able to breath. She was diagnosised with bilateral tension pneumothorax and was air-lifted to Children's Hospital in Minneapolis. The flight team arrived a couple hours after her birth and put a chest tube in on the right side to relieve the pressure. The left was not severe enough to require a chest tube. She spent 6 days in the NICU. They gave her a clean bill of health with no long term effects. At the time of discharge her breathing was still rapid (about 80 breaths per minute) and they said it is common with pneumothorax and it should resolve in one to two weeks. Two weeks came and went and the breathing remained rapid. It wasn't until six weeks old that doctors started to become more concerned and she was referred to specialists (pulmonologist first, then cardiologist). She had echocardiograms that showed severe pulmonary hypertension and enlarged right atrium and ventricle due to the heart having to work hard to pump blood to the lungs. No heart defects were found. She was given the diagnosis of primary pulmonary hypertension. 

She travels out of state to Denver Children?s for her specialists annually and receives care between trips at Mayo Clinic Rochester. She has regular echocardiograms, pulmonary function testing, 6-minute walk studies, exercise tests, EKGs, and heart catheterizations. She has responded well to oral medications to treat her PH and her pressures are almost normal at the present time. Her heart size and function has also returned to normal. In 2017 she was diagnosis with TBX4 gene mutation (also known as small patella syndrome) and interstitial lung disease that does not fit into a known category. She has restrictive airway disease which causes her to only have 60% of normal lung volume. Her lungs are not normal in many ways, but she still manages to be active and live a full life, even if she gets short of breath easily and does not have the same stamina as her peers. 

She rides horse, a passion that stated at the age of 5 years. She loves German Shepherds. She also plays volleyball and is the team setter. TBX4 impacts her lungs and lower limbs. She has small patella syndrome and manages her knee caps dislocating by wearing knee braces when active to help prevent her knee caps from popping out of place. She currently takes 12 medications and has supplemental oxygen as needed. 

​Below is a list of patterns that have been chosen for this quilt.
Please check this list for duplications before signing up.
Link to sign-up form is at the bottom of the list.
Accepting 20 signups
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1. Kaye - OK - Encore! Furry Friends -Appaloosa (Appaloosa standing facing right)  
2. Sandy S - MO - Horsin' Around by Vanessa(Mare and Colt) -Grazing mare with colt
3. Nicky T - UK - AnnaXStitch pattern from Etsy(Horse cross stitch pattern) - Head of brown horse
4. Debbie S - AL - Etsy (Mother's Love Brown Mare and Foal)
5. Carol H - PA - Cross Stitch & Country Crafts - A realistic horse's head in profile using mahogany, gray, and brown thread colors.
6. Ginny H - NY - Stoney Creek Book 393 Majesty in Motion (Play Time) - Brown horse playing in grass w/mountains in background
7. Jeanne O - PA - America's best loved dogs(German shepherd) - Head and full body (2 German Shepherds) facing left; words below it
8. Julie L - PA - Jeanette crews, Wild Horses by Mary Ellen Yanich(Pinto) - CHINCOTEAGUE pinto pony standing in sea grass facing right (reversed pattern )
9. Mary Ann M - MO - Etsy-AstraPattern German Shepherd - German Shepherd facing front
10. Sharon H - UK - Etsy. patternmakerdesigns(shetland pony) - Pony facing left
11. Steph L - ID - Stoney Creek Whiskers and Friends - Galloping Horses
12. Amy L - VA - https://www.etsy.com/listing/731237619/cross-stitch-pattern-haflinger-horse - Horse from chest up, facing forward but turned slightly to left
13. Rita L - MI - Horse Play by John Clayton - White horse with two brown colts in field
14. April N - MO - etsy (Horse in Winter ) - grey spotted horse
15. Angela T - CA - Dogs, Collection 5 - German Shepherd   
16. Joan M - AZ - foal standing in grass facing right 
17. Nancy F - IL - Dimensions The Gold Collection Petites(Equine Pair) - 2 horses' heads - one white, one brown
18. Gail B - ID - Stoney Creek Whiskers and Friends (Foal and Kittens) - Foal laying down with 2 fluffy kittens
19. Stephanie H - WI - https://www.etsy.com/listing/767369554/ - StitchersLand Etsy Shop - Horse with Daisies
20. Carol M - AZ - The essential dog - German Shepherd sitting facing. Forward
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