Birth Date: June 1, 2018

Diagnosis: Dysphagiay & Hypotonia

Theme: Sun, Moon & Stars

Due Date: March 1, 2022

Juliana's Story

Juliana was born June 1, 2018 by scheduled c-section. I had a very complicated pregnancy with severe anemia, gestational diabetes, polyhydramnios, and group b strep. She was born dark blue and not breathing, with low apgar scores, and was in the NICU for the first 24 hours. My sister was actually the first to see her (not me) due to this reason. At birth, she was diagnosed with hip dysphasia, hypotonia, and borderline failure to thrive as she lost close to 10% of her weight in the first day. For the hip dyspahsia, we had to double diaper the first year but it seems to have corrected itself now. The other things not so much...

At 7 weeks, Juliana stopped breathing and was admitted to the hospital overnight, resulting in a diagnoses of BRUE (Brief Resolved Unexplained Episode). She was in early intervention from the time she was born to the time she turned 3 when they no longer do early intervention in New Hampshire. She received physical therapy, speech (communications disorder/speech delay), and occupational therapy for the first 3 years of her life and continues to receive occupational therapy and speech therapy. At two years old, she was diagnosed with sensory processing disorder. She has a very hard time with any lights on, if there is any noise that is slightly loud, if there is anything out of place in the house, if she is not able to wash her hands 100 times a day, and if she has any dirt on her clothes.

From around 1.5 to now, 3 years 4 months has been our hardest period. In February 2021, she was hospitalized out of state for 5 days due to RSV, Fluid in her ears and lungs, pneumonia, and unstable oxygen. She was shortly after diagnosed with asthma due to her frequent respiratory infections. She often gets sick even when no one else does. Things seemed OK for a little while ... other than the frequent illnesses and sensory stuff, but then again when downhill around March 2021 when she was diagnosed with sleep apnea and had her adenoids out. Then in May she had tubes placed in both ears for frequent ear infections That didn't seem to help much as she got another ear infection almost exactly a month to the day that the tubes were placed. In June 2021, she ended up with Parainfluenza 3 which turned into croup and she spent 5 days in and out of doctor's offices, urgent cares, and hospitals again. In August, she was diagnosed with RSV again but this time we were lucky enough to stay out of the hospital. Also in August, she was diagnosed with dysphagia meaning that she aspirates on 70% of liquids. Anything that is not solid (ie drinks, soups, medicines, etc) has to be thickened.  

We are currently working with out of state doctors to figure out the cause. It is suspected she has a cleft as well as an autoimmune disorder and a suspected genetic disorder that occurs in 1 in 17000 kids. 

​Below is a list of patterns that have been chosen for this quilt.
Please check this list for duplications before signing up.
Link to sign-up form is at the bottom of the list.
Accepting 12 signups

1. April N - CA - Etsy SweetAnnet - Sun & Moon - NA - Combined faces w/ colorful rays
2. Sandy S - MO - DMC.com - New Moon - NA - Face on new moon, surrounded by clouds & stars
3. Sharon H - UK - Etsy CreateYourStyle2020 - Crescent Moon - NA - Colorful crescent moon & stars
4. Sandra P - MA - Needle Treasures kit - Sleepless - NA - Sleeping crescent moon wearing blue nightcap, w/ boy swinging from tip of cap
5. Tywanna J - NC - For the Love of Cross Stitch 7/2000 - Here Comes the Sun - Pg 18 - Face on sun above clouds
6. Shanna J - CA - DMC.com - Half Moon - NA - Half moon on face of sun w/ rays, remainder of sun filled w/ stars
7. Angela T - CA - DMC.com - Sun and Moon - NA - Crescent moon & sun, w/ clouds & stars
8. Kaye S - OK - Sam Sarah Design Studio - Sunny Side of the Street - Pg 2-3 - Large smiley-face sun, looking down on colorful flowers
9. Vicki S - SC - Ruyishiji kit - Moon 0001 - NA - Crescent moon w/ boy angel sleeping on pink & white pillow
10. Jeanne O - PA - Etsy ClimbingGoatDesigns - Christmas Star - NA - Large star made up of various size stars, color changes to eliminate red & green
11. Mary Z - CA - Etsy LinaOvaCrossStitch - Here Comes the Sun - NA - Gold sun with rays cresting aqua hills, w/ words in coral
12. Ellen S - NZ - Kingxin Cross Stitch kit - Moon 0002 - NA - Crescent moon w/ boy angel sleeping on purple & white pillow 

Juliana M. 
New Hampshire